Capabilities

Overall description of capabilities
Details
Capability: Community Engagement and Health Education

Project Timeline: 6/1/2008 - 4/30/2013

Sequoia Foundation implemented a pilot project in one urban and one rural community in Uganda for surveillance of moderate to severe NDDs (autistic spectrum disorders, cerebral palsy, epilepsy, mental retardation, speech and language disorders, visual impairment, and hearing impairment) in children 2 to 9 years of age. Screenings were conducted on a door-to-door basis using an expanded version of the Ten Questions. Children who screened positive and a sample of those who screened negative were invited to participate in a comprehensive diagnostic assessment and obtain recommendations on feasible interventions, if indicated.

Results of the screening and assessments were statistically compared to establish psychometric properties of the screening tool, and preliminary data was tabulated to estimate prevalence and a basic demographic description of children. Feasibility of future expansion of NDDs surveillance to other areas of Uganda was evaluated based on these findings as well as a needs assessment of the training requirements needed to strengthen and enhance Ugandan and international clinicians and epidemiologists to share information and resources.

Projects

  1. Genome-Wide Association Study of Childhood Leukemia by Hispanic Status
  2. Characterization of CFTR Mutations Among Non-White CF Patients
  3. Building Capacity for Health Impact Assessment at State and Territorial Health Agencies
  4. Perinatal Exposure to Airborne Pollutants and Associations with Autism Phenotype
  5. Designing a Next Generation Science Standards Ready Air Quality Science High School Curriculum (Phase I and II)
  6. Social and Climate Change Migration Policy: Government of Tuvalu (South Pacific)
  7. Tobacco and cannabis exposure during pregnancy in six race/ethnic subgroups in California
  8. Studying Mothers and their Children at Risk from In Utero Exposure to Grandmaternal Smoking
  9. Public Health Effects of Increased Prescribe Burns for Wildlife Management
  10. East Bay Diesel Exposures Project (EBDEP)
  11. Expanding California Biomonitoring Database through Statewide Surveillance and Targeted Population Studies
  12. California Region Exposure Study 3 (CARE-3)
  13. California Region Exposure Study 2 (CARE-2)
  14. California Region Exposure Study I (CARE-LA)
  15. California's Strategic Plan Implementation Grants for Asthma
  16. Environmental Health Symposium for Promotores and Community Health Workers
  17. Palos Verdes Shelf Fish Contamination Project
  18. San Francisco Bay Fish Project
  19. Improve Low Rates of Childhood Lead Screening Amongst Health Care Providers
  20. Effectiveness of a Large Prenatal Tobacco Reduction Program
  21. California's Childhood Lead Poisoning Prevention Program
  22. Collection of Dried Blood Spots from Children for the Examination of CMV
  23. PBDE/Breast Milk Monitoring
  24. Early Childhood Mortality Study
  25. Preterm Markers Study-2006/07
  26. Maternal and Infant Genetic Contributions to Preterm Birth: the Inflammatory Response
  27. Preterm Markers Study-2009/10
  28. Development of a Research-Ready Pregnancy and Newborn Biobank in California
  29. National Newborn Screening and Genetics Resource Center
  30. Newborn Blood Spots, Collaborative Project with UCD Public Health Sciences Department
  31. Environmental and Molecular Epidemiology of Childhood Leukemia
  32. Evaluation of the Partnership for Smoke-Free Families Program
  33. Genetic Contributions to Preterm Birth Study
  34. Outcome Prediction in Children with Positive California Cystic Fibrosis Newborn Screening
  35. Prenatal and Neonatal Biologic Markers for Autism
  36. Ascertain Environmental Exposure During Pregnancy
  37. Enhancing the California Environmental Contaminant Biomonitoring Program
  38. CA Title 17 Analysis: Training/Certifying Renovation, Remodeling, and Painting Activities
  39. Children's Health Initiative - Impacts of Childhood Asthma in California
  40. Prenatal Smoke Exposure and Age at Menarche
  41. Selection In Utero: A Test of Competing Explanations
  42. iCARE General Population File
  43. Case-Control Study of Maternal and Infant Genetic Contributions to Preterm Birth
  44. California's Chronic Disease Environmental Health Surveillance System
  45. Design of California's Response and Surveillance System for Childhood Lead Exposures (RASSCLE II) System
  46. Data Mapping California's Blood Lead Testing Reports
  47. California Electronic Blood Lead Reporting Security and Data Transmission Upgrades
  48. Cystic Fibrosis Foundation Patient Registry Data Analysis

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