Capabilities

Overall description of capabilities
Details
Capability: Capabilities

Project Timeline: 2/1/2012-5/31/2012

Sequoia Foundation completed this study to characterize missed cases of cystic fibrosis. To complete this project, data was collected and analyzed from pooled national newborn screening programs (NBS). Each state’s data was consolidated and then appended into a larger set for cleaning and analysis. Immunoreactive trysinogen (IRT) levels which, when elevated are highly predictive of cystic fibrosis, were converted to percentile values to enable comparison across different programs and the frequency of false negative cases were charted.

Individual level data from false negatives were then summarized for all states, and distributions were compared. Using the individual level data, Sequoia Foundation was able to identify characteristics that are statistically correlated  with one another to aid in the interpretation of the results.

Projects

  1. Newborn Blood Spots, Collaborative Project with UCD Public Health Sciences Department
  2. Environmental and Molecular Epidemiology of Childhood Leukemia
  3. Evaluation of the Partnership for Smoke-Free Families Program
  4. Genetic Contributions to Preterm Birth Study
  5. Outcome Prediction in Children with Positive California Cystic Fibrosis Newborn Screening
  6. Prenatal and Neonatal Biologic Markers for Autism
  7. Ascertain Environmental Exposure During Pregnancy
  8. Enhancing the California Environmental Contaminant Biomonitoring Program
  9. CA Title 17 Analysis: Training/Certifying Renovation, Remodeling, and Painting Activities
  10. Children's Health Initiative - Impacts of Childhood Asthma in California
  11. Prenatal Smoke Exposure and Age at Menarche
  12. Selection In Utero: A Test of Competing Explanations
  13. iCARE General Population File
  14. Case-Control Study of Maternal and Infant Genetic Contributions to Preterm Birth
  15. California's Chronic Disease Environmental Health Surveillance System
  16. Design of California's Response and Surveillance System for Childhood Lead Exposures (RASSCLE II) System
  17. Data Mapping California's Blood Lead Testing Reports
  18. California Electronic Blood Lead Reporting Security and Data Transmission Upgrades
  19. Cystic Fibrosis Foundation Patient Registry Data Analysis

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